Realise Advocacy is working to build equitable and sustainable support for rare disease PAGs' involvement in drug development and access
Realise Advocacy supports patient involvement in drug development and access through:
RareCare is co-led by Consilium Scientific and Realise Advocacy, with support from Coventry University and Human Data Sciences.
We are delighted to be collaborating with 8 Patient Advocacy Groups to ensure that the rare disease community are represented in this important research.
RareCare will help decision-makers to improve how the National Health Service (NHS) and other services support people living with rare diseases. Our research will generate practical outputs for individuals and families, carers, and service providers.